Local residents are holding a fundraiser for the second year for a rare disorder affecting about one in every ten thousand people. Sue Tiffin has a two-year-old who was diagnosed with Angelman Syndrome in 2013 and she explains what it is.
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The second annual Catch the Cure event is happening in Minden on February 14, and Tiffin explains how it’s about more than just raising money.
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The event is in honour of International Angelman Day, and it’s the only event like it in Canada. Because of this, Tiffin explains, they’re getting recognition all over the world. She says the Angelman community is very close knit and she counts her blessings when she hears stories about other families who struggle to get support from their communities. Tiffin says the support they get is motivating as parents.
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The event is kicking off at one o’clock and will include a public skate, pasta dinner, skate show, silent auction and face painting. To find out more, go to the Catch the Cure Facebook page by clicking here.
(Photo courtesy: Facebook)